DinkyKt's Blog
Blackout Tuesday
Katie Wearing • June 2, 2020
Black Lives Matter
I understand that I will never understand. However, I stand. I will spend today researching, learning. 🤚🏻🤚🏼🤚🏾🤚🏾🤚🏿🖤
How lived experience of Ehlers-Danlos syndrome inspired two books offering comfort, validation, and understanding
Turning Pain Into Pages — and Now, Soundwaves
Because being a Bluebird isn’t just for one season — it’s for life.
Navigating dental trauma, healing, and care with classical Ehlers-Danlos Syndrome
Navigating Uncertainty: How the NHS Reforms Could Impact Those of Us with Rare and Complex Conditions
“Speaking up about cEDS and medical care—raising awareness, not negativity.”
“A personal account of medical neglect, pain, and the lasting consequences of being failed by the system.”
