It feels like there is a lot going on at the moment, so I wanted to sit down and write a little update with a bit of everything in one place.

First of all, my awareness stall is now only one week away, which feels both exciting and a little nerve-wracking. There has been so much to sort out behind the scenes, from products and pricing to signs, displays, and all the little details that people often do not see. Even though there is still plenty to do, it is starting to feel much more real now, and I am really looking forward to it.

This stall means a lot to me, not just because of the products I will have there, but because it is another chance to raise awareness of Ehlers-Danlos Syndrome and continue supporting EDS Support UK through the work of Dinkykts EDS Diaries. Every little step matters, and being able to do something visible like this feels really special.

I also want to take a moment to say a genuine thank you to everyone who has been helping me, supporting me, encouraging me, and giving their time in different ways. Whether that has been helping with ideas, printing bits for the stall, listening to me stress, offering advice, or simply cheering me on, it really does mean more than I can say. A lot of this would feel much harder without that support around me, and I never take it for granted.

I have also been spending time updating my online store, which definitely needed a bit of a refresh. Some prices had changed, some products needed better descriptions, and there were items on there that no longer really reflected where things are now. So I decided it was time to start making it feel clearer, more up to date, and more in line with what Dinkykts EDS Diaries is all about today.

The shop now feels much more organised, with updated product wording and a better overall feel. I still may keep tweaking bits here and there, but it already feels like a much better step in the right direction. If anyone visits the website through my QR code at the stall, I want them to land somewhere that feels welcoming, clear, and true to the awareness work behind it.

Alongside that, I have also been working on making sure people can more easily understand the difference between my colouring book and my digital reading companion eBook, as I know that has caused a little confusion at times. My colouring book, DinkyKt’s EDS Diaries: Colouring Through Chronic Illness, is a physical book filled with colouring pages designed around chronic illness, awareness, and creativity. My eBook, A Gentle Companion to the Colouring Book, is different because it is not a physical book and it is not a second colouring book. Instead, it is a digital reading companion created to go alongside the colouring book, offering extra gentle support in a different format. The colouring book is available to order on Amazon or through Heaths Bookshop, while the eBook is a digital companion designed to sit alongside it.

There has been a lot of planning, updating, checking, and re-checking lately, and while it can feel overwhelming at times, it is all for something I care deeply about. Dinkykts EDS Diaries has always come from a very personal place, and every product, post, event, and project is part of that bigger aim of raising awareness, helping people feel seen, and giving back where I can.

So with only one week to go until the stall, I just wanted to say thank you again for being here, for following along, and for supporting what I do. Whether you have bought something, shared a post, encouraged me, or simply taken the time to read my updates, it all matters.

Here is to the final week of preparations — and hopefully a lovely day raising awareness and supporting a cause that means so much to me.

With love,

Katie

Dinkykts EDS Diaries There has been a lot of planning, updating, checking, and re-checking lately, and while it can feel overwhelming at times, it is all for something I care deeply about. Dinkykts EDS Diaries has always come from a very personal place, and every product, post, event, and project is part of that bigger aim of raising awareness, helping people feel seen, and giving back where I can.

So with only one week to go until the stall, I just wanted to say thank you again for being here, for following along, and for supporting what I do. Whether you have bought something, shared a post, encouraged me, or simply taken the time to read my updates, it all matters.

Here is to the final week of preparations — and hopefully a lovely day raising awareness and supporting a cause that means so much to me.

With love,

Katie

Dinkykts EDS Diaries 🖤