Hi everyone! It really has been awhile, hasn't it since I last posted here?! There's been so much happening that where do I begin? So let me tell you where I've been, what I've been doing and how I am feeling. So grab yourself a cuppa tea and a snack, put your feet up and relax while you catch up with me.

 I'll start with the less fun stuff first and that's being my appointments. I've had a few appointments with my occupational therapist, my hand therapist and soon I'll be having my appointments. Some of these appointments have been really positive and very helpful to me indeed. Whilst the others not positive and helpful also I know that the therapist tried her best for me. I have just remembered that I have also had an appointment with a dietician and that went as expected. 

Now time for me to tell you about something more exciting that is I went on a weekend trip away to Manchester at the beginning of May. While we were there, we definitely kept ourselves busy and even managed to do a bit of sightseeing which is something that we often don't do when we go to Manchester and going to London last year inspired me to see more of the attractions in the city centre.

As per usual on Friday night we went out for a nice meal and we found a lovely Italian restaurant where I got the biggest pizza calzone ever although it was delicious! We had a little walk around just to get our bearings and treat ourselves to a few little treats to munch on in the hotel room. Then we chilled out the rest of the evening as we were tired from the travelling and had a busy day ahead of us.

We started of the day with a breakfast in the hotel restaurant and then we got ready for the day in our hotel room. Slowly we made our way to the peoples history Museum. I spent a few hours there. I really enjoyed it at this museum as I love history and I love learning about different things that happened in peoples lives whether that is political, activism and awareness. This museum is free and there are special tours and exhibitions that you can do where you have to pay. I would recommend anyone paying visit to this museum, especially if you enter this kind of information. From The we had a slow walk and decided to have our dinner tea at Wagamama's. This is my first time at Wagamama's ever and I would happily go again. They actually had children's portions so I was able to get what I wanted but a small size which was still huge! We were able to sit outside and watch the world go by and enjoy the sunshine. That was one thing that we did have all weekend and that was the good weather. Due to mixup with a timing with the venue, we found we had more time to enjoy the sunshine and have a drink at coffee place while we waited. Finally, it was time to go to the venue and check in for my meeting and greet with Blue. It was exciting yet nerve racking as I didn't know what this venue would be like for disability access on the whole it was mostly good. It was great seeing the guys again and having more pictures took with them. The actual M&G event made me feel uncomfortable due to there being loud music, all the other fans being in the room so the M&G wasn't intimate or private. It didn't feel as special as a M&G should considering the sort of money you're paying for the experience. I'm partially deaf so it was hard for me to hold a conversation with C and to talk properly with the band. It all made me feel uncomfortable and anxious. I have tried looking for where to give feedback to the relevant people but struggling so if anyone seeing this can point me in the right direction, then please do. The show was amazing as always when I see Blue! The only issue was that they were large speakers right in front of where the disabled area was so it did block some of the view especially of the big screen at the back of the stage. If these were pushed back then the view would be perfect. Apart from these issues the venue was lovely and the staff are really friendly and helpful.

After another good breakfast and packing up at belongings, it was time to leave. Even though I'm such a leave after having a good weekend, I was tired and I was ready to have a good rest. We met my parents at Morecambe. The four of us had dinner at Rita's café, which is a popular café to go to in Morecambe that has been there for years. Then we passageways with C as she went home and we spent a few hours in the seaside resort.  Then we passageways with C as she went home and we spent a few hours in the seaside resort.  Then we parted ways with C as she went home and we spent a few hours in the seaside resort. We had to browse in the market and I got to do a little bit of filming just like I had done all weekend. What a wonderful weekend I had from start to the end! Thank you C for taking me and to my parents.

There have a few birthdays including my own so I'm officially only one year off till I turn 40! Can't believe I'm now in my last year of my 30s, it still feels right yesterday when it was my 30th birthday and I had a big party to celebrate it. It's what I'm planning to do next year. I had a Wolfly day celebrating I decided to go to the football ground as they had a family fun day and it was sunny  it felt chilly at times.. I had a Wolfly day celebrating I decided to go to the football ground as they had a family fun day and it was sunny. It felt chilly at times. Then me and my parents ordered a Chinese takeaway which I enjoyed with on.

The other thing I want to tell you about is that May was EDS Awareness month so this made it a busy month for me. Me and my sister organised for us to do a Dazzle Walk for the EDS UK charity. So hopefully me and my niece will both receive a certificate and a medal each for raising over £100 each. Some of my family joined us on the walk, which was brilliant and we are thankful for everyone that sponsored us both! We did 5 miles in total. We raise £385 in total! I managed to complete the my EDS challenge throughout the month as well which was organised by the Ehlers Danlos Society. This was challenging at times but I always enjoyed it as it made me feel fulfilled, proud and happy to do it every day.

As much as it's all been fun, rewarding and exciting, it has worn me out both physically and mentally. I'm taking the time to recharge my batteries. In the meantime, I will slowly begin to start planning my future videos for my EDS YouTube channel. Both of my YouTube channels are doing well at the moment and I'm thankful for everyone's support towards them. Please keep liking, sharing and subscribing to my channels as it really does help me with reaching my milestones.

Me and my sister went to see a Professor talk to his audience about mass murderers at my local theatre; The Forum. It was a lovely evening. First me, my sister, my niece, my brother-in-law and my parents all went to the local Chinese buffet restaurant for something to eat and left us two to to the theatre. There we met my uncle, my cousin and her daughter and it was a nice little reunion; catching up on life.

Thank you for taking the time to read this blog post and I will be back again soon, hopefully not too long this time I have missed keeping you all updated with my life. Take care everyone and I will see you all soon in my next blog post.

Love DinkyKt xxx