DinkyKt's Blog
Two Books, One Purpose: Creating Gentle Support for Chronic Illness from Lived Experience
How lived experience of Ehlers-Danlos syndrome inspired two books offering comfort, validation, and understanding
Two Books, One Purpose: Creating Gentle Support for Life with Chronic Illness
Living with a chronic illness often means navigating pain, fatigue, uncertainty, and a world that doesn’t always understand what day-to-day life can look like. Through Dinkykts EDS Diaries, I have spent years sharing lived experience of Ehlers-Danlos syndrome (EDS) - particularly Classical EDS - with honesty, creativity, and compassion.
That work has now grown into two published books, each created with the same intention: to offer gentle support, validation, and reassurance to people living with chronic illness.
Colouring Through Chronic Illness
Dinkykts EDS Diaries: Colouring Through Chronic Illness was the first book I released. It is a mindful colouring book inspired by life with Ehlers-Danlos syndrome and other chronic conditions.
The book was designed to be calming rather than demanding. There are no rules, no pressure to finish pages, and no expectations - just space to slow down, rest, and create at your own pace. Many readers use it during flare days, periods of anxiety, or moments when concentrating on words feels difficult.
The colouring book is available in paperback via Amazon.
A Gentle Companion to the Colouring Book
My second book, A Gentle Companion to the Colouring Book, was released as an ebook and acts as a written companion to the colouring book.
This is not a self-help guide or a list of coping strategies. Instead, it offers quiet reassurance shaped by lived experience of chronic pain, fatigue, joint instability, and the emotional impact of long-term illness. It acknowledges the reality of living in a body that requires constant adaptation, and gently reminds the reader that they are not failing - they are navigating something genuinely difficult.
The ebook can be read in any order, dipped into when needed, or simply kept close for comfort. It is available on Kindle, including Kindle Unlimited, and benefits from Kindle’s accessibility features such as adjustable text size and assistive reading options.
If there is enough interest, a small paperback version may be considered in the future.
“Living with chronic illness can be incredibly isolating. Ehlers-Danlos syndrome affects far more than joints - it affects confidence, identity, and everyday life. These books weren’t created to fix anyone or push positivity, but to offer gentleness, validation, and reassurance on hard days, and to remind people that they are not alone.”
— Katie Wearing, creator of Dinkykts EDS Diaries
Why These Books Exist
Both books were created to help counter the isolation many people with chronic illness experience - especially those with invisible conditions like EDS. They are rooted in lived experience, not medical advice, and aim to offer something simple but often missing: understanding, belief, and gentleness.
They are not about fixing anyone. They are about sitting alongside people and saying, “You are not alone in this.”
Where to Find the Books
Both books are available on Amazon.
More information, updates, and direct links can be found via:
- Website: www.worldofdinky.co.uk
- Facebook page: Dinkykts EDS Diaries
