DinkyKt's Blog

Colouring Through Chronic Illness — and Sharing My Story on the BBC

Katie Wearing • November 13, 2025


Turning Pain Into Pages — and Now, Soundwaves


I still can’t quite believe I’m writing this…


My first ever colouring book — DinkyKt’s EDS Diaries: Colouring Through Chronic Illness — is officially published and available on Amazon! 🖤🦓


What started as a creative coping tool during long flare days has turned into a fully printed, fully real book that I hope will bring comfort, strength, and a little bit of calm to anyone navigating life with a chronic illness.


Every page is hand-drawn, filled with empowering quotes, zebra pride, and moments from my personal journey living with Ehlers-Danlos Syndrome (EDS). It’s not just a colouring book — it’s a celebration of survival, identity, and hope. And now it’s out in the world.


And as if that wasn’t exciting enough… I was just interviewed by BBC Radio Cumbria! 🥹📻 The interview will air soon and includes a special song I chose — Better Days by New Kids On The Block — a song that feels incredibly fitting for this moment in my life.


We talked about:


  • My journey with EDS
  • How I manage life with a chronic condition
  • The development of this book
  • My 2026 calendar project (also raising money for EDS Support UK)
  • And what I hope these creative projects will bring to others


It’s a short interview (about 3.5 minutes), but such a meaningful moment for me. I’m so grateful for the opportunity to raise awareness and celebrate a huge milestone — not just for me, but for our entire chronic illness community.


I’ve been going on about this nonstop, I know — but honestly? It’s huge to me. Thank you to everyone who’s supported, encouraged, and believed in this dream. 💛


📘 The book is £9.49 on Amazon, and £1 from every copy sold goes directly to EDS Support UK.

🏬 I’m also working on getting it stocked in actual bookstores — fingers crossed!


Let the colouring (and happy tears) begin.


#EDSwarrior #ColouringThroughChronicIllness #ChronicIllnessAwareness #RadioCumbria #SelfPublishedAuthor #InvisibleIllness #DinkyKt #BBCInterview #BarrowPride #ZebraStrong #BetterDaysAreComing

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Discussing the pricing.
By Katie Wearing January 19, 2023
Hi everyone! As many of you who follow us over on our Facebook page Dinkykts EDS Diaries, you will be aware that we are coming up to 10 years since we began, back in February 2013. So slowly, we are looking back on the positives of our campaign work. I believe in celebrating these milestones and why not?!! While the odd bit of Dinkykts EDS Diaries has received bits of help from various individuals, the majority has been done by myself (Katie) so anything that has been done is incredible. I know that we haven't done huge things, what we have done is wonderful and I am proud. Looking back, we never did manage to organise a family fun-day and that was one of the reasons why we began this campaign but due to the nature of having a rare disease like Ehlers-Danlos Syndrome, you just never know what life throws at you. Perhaps in the near future, we can actually organise a family fun-day? Hopefully this time, I won't end up in hospital (twice) haha! I have always wanted to go out in the community, whether it's going into schools, colleges, medical panels or having a stall where I meet random members of the public and raise awareness, and hopefully fundraise at the same time. I did get a taster of going into classes at college when I attended my local sixth form college and I really enjoyed it. We will be showcasing whatever we do on our YouTube channel as that's our main focus of awareness work. We also have the whole month of May to do lots of things as that's EDS Awareness Month and we want your ideas/suggestions! So definitely more highlights to come in 2023 and beyond!! Love DinkyKt