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Hi everyone! As many of you who follow us over on our Facebook page Dinkykts EDS Diaries, you will be aware that we are coming up to 10 years since we began, back in February 2013. So slowly, we are looking back on the positives of our campaign work. I believe in celebrating these milestones and why not?!! While the odd bit of Dinkykts EDS Diaries has received bits of help from various individuals, the majority has been done by myself (Katie) so anything that has been done is incredible. I know that we haven't done huge things, what we have done is wonderful and I am proud. Looking back, we never did manage to organise a family fun-day and that was one of the reasons why we began this campaign but due to the nature of having a rare disease like Ehlers-Danlos Syndrome, you just never know what life throws at you. Perhaps in the near future, we can actually organise a family fun-day? Hopefully this time, I won't end up in hospital (twice) haha! I have always wanted to go out in the community, whether it's going into schools, colleges, medical panels or having a stall where I meet random members of the public and raise awareness, and hopefully fundraise at the same time. I did get a taster of going into classes at college when I attended my local sixth form college and I really enjoyed it. We will be showcasing whatever we do on our YouTube channel as that's our main focus of awareness work. We also have the whole month of May to do lots of things as that's EDS Awareness Month and we want your ideas/suggestions! So definitely more highlights to come in 2023 and beyond!! Love DinkyKt
Hello, on the 6th February 2023, it'll be the 10th anniversary of Dinkykts EDS Diaries and of course, we will be celebrating this milestone! One thing for sure is that we will be doing a livestream, and on this live, we'll be doing the lucky dip raffle. we have sold some of the numbers already, but will need to sell more so that we can finally do it. :D Once the prize is chosen by the winner, there will be a donation made to the Ehlers-Danlos Support UK charity so definitely pick your numbers and soon! It'll be £1 per number and you can pick as many as you wish or you can just pick the one. We would preferably be paid via PayPal. Message us if you have any questions or anything. The prize will be something from the online store... there's plenty of wonderful products to choose from! Click at the top left to go to the store. Do you have any other suggestions in how we can celebrate this milestone, in how we can raise awareness and fundraising money for charity, do share with us. We have thought of one or two ideas so far but more suggestions/ideas are definitely welcome. Maybe you could do something at home, in the workplace/school or somewhere else to raise awareness? We can't believe we will be celebrating ten years, absolutely crazy! but we feel super proud of the journey that we have shared together because without your support and kindness, we wouldn't be here today, so THANK YOU!!! Love DinkyKt
A Quick Summary Of This Week
So it’s now Friday evening and I’m resting while watching a documentary (something of a regular occurrence for me!). It’s been a few good weeks for me, making up for the rubbish start to 2018 when I was laid up very ill with a chest infection. This week alone, I’ve been out three days in a row and mixing Hydrotherapy in the mix, has took its toll on me. I can’t complain as I have enjoyed the majority of everything that I have done, even the long wait for the Rheumatolgy appointment I had on Tuesday and then feeling yucky later in that evening! Then seeing my niece on Wednesday and yesterday when my sister took me to Hydro.
My mind is preoccupied with ideas for a new t-shirt design and trying to think of new videos for EDS Awareness Month. I really want it to be a successful month with the videos and any EDS Awareness stuff that I work on to raise as much awareness as I possibly can.
If I designed a new t-shirt, I’d be nervous as for some reason I never sold any of my last design which was Smallville themed - I’m a huge fan of the former tv series. Although saying this, my other designs were more successful so it needs to be something new and different to any of my previous styles. I do have an idea. Another idea is would anyone be interested in hoodies or hats as well? I always try to keep my prices as low as possible.
This weekend, I think I’m heading into town with my parents and then Saturday, we will probably go food shopping or something along those lines. Thankfully nothing too exciting and adventurous! I hope you all have a lovely weekend and I’ll write again soon. Take care my lovely peeps 😘❤️ xxx
Friday 4th May 2018