DinkyKt's Blog

Madness of May

Katie Wearing • June 6, 2018

Definitely A Mad Month For Me!

Like most years when May is looming, as excited as I am, it always leaves me a little overwhelmed. Why? You might be asking, well let me chat about the Madness of May!
On the 10th which was a Thursday, I had Hydrotherapy in the afternoon and then in the evening, I went to see Pasha and Anya at my local Arts and Theatre place: The Forum. In between going from the hospital and then the show, I had little time to fully get ready and make sure I have something to eat. Then I was due at the theatre for before 6:30pm as I was doing a VIP (meet and greet with Pasha and photo opportunity). Normally on a typical day where I need to dress and get glammed up, it can take me at least 2 hours! That's for me to slowly do my makeup, have something to eat and get dressed with rest breaks in between... it's very tiring for me but the end result is worth it for me. It's much better when I have more time and it is later on in the day where I've had some sleep because it is quite a struggle having to get ready for before midday (I don't sleep very well and often a bad pattern). You'll be able to imagine how much anxiety it causes me when I have a wedding or a christening early on in the day and it's not nice, worrying about how you are going to function on less than 3 to 4 hours a night when I struggle with fatigue as well. Okay, I'm going off track here so let's get back to what we were talking about... Anyway seeing Pasha again was lovely. He didn't call me a 'groupie' this time ha ha!!
Then the following Thursday, again I had Hydro. In fact on every Thursday in May, I have Hydro! Then on Friday, I went to Blackpool for the two nights that weekend. We got there about tea time as we had to stop at a tyre garage. We stayed at the Norbreck Castle Hotel... okay it's run down but it's NOT THAT BAD!! All we were doing was sleeping there. As long as everything works, it's clean and the beds are comfy,, that's what really matters. In my opinion, anyway. We had a great weekend to sum it up although it did leave me feeling exhausted from the travelling, being on the go all day for three (actually ended up being five days) and not resting like I usually do. You can see what I and my parents got up to during this weekend break on my YouTube channel.
I did have an appointment to meet my new Dental Hygenist but unfortunately had to cancel. I was too exhausted and fatigue had struck me. Pain wasn't great either. Anyway, this has been rescheduled.
On Wednesday the 23rd, it was my dad's birthday and it was a special one this year. We all went to The Dunes for a gorgeous meal. There was me, my mum, my sister and my little niece' Ciara. Then on the Thursday, Hydro then came home to get ready to go to my local Wetherspoons to meet some of my dad's family to help him celebrate his birthday. It was a fun night and he really enjoyed his special night!
I can't remember what I did between this Thursday and then my birthday on the 31st. Don't recall doing anything majorly exciting ha ha!
So on my birthday, we all went to the Lakeside and Haverthwaite Railway which we all enjoyed the ride on the steam train. When we got to Lakeside, we grabbed some food from the café/shop there and ate in the sunshine. Me and Ciara shared my hotdog which was quite nice. Then once we were ready, me, my dad and my sister along with Ciara (my mum stayed outside) visited the Lakeside Aquarium. It was small but it was good. Like my Blackpool vlog, you can see my birthday vlog also up on my YouTube channel. From the Aquarium, we headed back to Haverthwaite on the train and made our way back to my sister's house where we were greeted by my brother-in-law' Leigh. There Ciara and my sister brought in some little cakes to me with three candles which i thought was cute. I chilled out once I got back home as I was quite tired. I had a wonderful day surrounded by my close family and being emtertained by my niece.
Thankfully, I had a much needed day of rest on the Friday. Then on the Saturday, we went to town and I managed to get my hair cut. I'm surprised that not many people have noticed as it was super long and had no layers in it! Once back home, it was time to get ready for my birthday night out. I met my amazing friends in the Wetherspoons for some food and then a few drinks. I loved seeing them and celebrating with them. I'd like to think that I've made a new friend from it too. Everyone of the ladies looked lovely and I was so happy that they could make it. I'm very lucky that I have finally found my true closest friends and that they're my friends.
On Sunday, me and my parents went to the Bosun's Locker for some food. The only complaint that I had was the bacon in my bacon sandwich was hard which baffles me because there really is nothing easier to cook than bacon! Everything else was delicious though.
Besides all the festivities, it is also EDS Awareness Month which definitely adds to the Madness of May for me. I always feel like I don't do enough for it but then I have to remind myself of all the other times I spend; writing up my EDS Facebook Page and ccreating videos for my channel.
Anyway, this blog post is soooo long but I had so much to say and catch you up on. I hope you like my new blog home? Hopefully it won't be as lengthy or as long waiting period in between as I think I have finally figured out how to do the blog on here. Take care and thank you for reading! <3

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Hi everyone! As many of you who follow us over on our Facebook page Dinkykts EDS Diaries, you will be aware that we are coming up to 10 years since we began, back in February 2013. So slowly, we are looking back on the positives of our campaign work. I believe in celebrating these milestones and why not?!! While the odd bit of Dinkykts EDS Diaries has received bits of help from various individuals, the majority has been done by myself (Katie) so anything that has been done is incredible. I know that we haven't done huge things, what we have done is wonderful and I am proud. Looking back, we never did manage to organise a family fun-day and that was one of the reasons why we began this campaign but due to the nature of having a rare disease like Ehlers-Danlos Syndrome, you just never know what life throws at you. Perhaps in the near future, we can actually organise a family fun-day? Hopefully this time, I won't end up in hospital (twice) haha! I have always wanted to go out in the community, whether it's going into schools, colleges, medical panels or having a stall where I meet random members of the public and raise awareness, and hopefully fundraise at the same time. I did get a taster of going into classes at college when I attended my local sixth form college and I really enjoyed it. We will be showcasing whatever we do on our YouTube channel as that's our main focus of awareness work. We also have the whole month of May to do lots of things as that's EDS Awareness Month and we want your ideas/suggestions! So definitely more highlights to come in 2023 and beyond!! Love DinkyKt
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