DinkyKt's Blog

Happy 2019! - General Update. 

Katie Wearing • February 2, 2019

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‘Hi everyone!

I’m finally uploading this brand new blog post and I know it was July when I last wrote here. I am sorry it’s been so long and I really wanted to update this site for such a long time but I’ve not had any luck in logging in to edit etc. Even my cousin who is quite savvy with computers and apps etc has struggled but I have asked my trusted friend to upload this for me on her laptop. So, how have you all been?
I’m not even going to attempt to fill you in on everything that I’ve been doing since my last post but you can click on the social media icons on the main page of the site to catch up on everything related to me.
I can’t believe it’s 2019 and I will be going into my 34th year of living! I’m thankful that I’m still here and alive. This year I am determined to complete some of my goals and I’ll be okay if I don’t manage to achieve them all because I can only do what I can do.
I’m currently in the works of doing some EDS/Disability Awareness campaigning which I’m quite excited about but being honest, I’m also terrified! Speaking out in groups has always been an issue that I struggle with but this will all be on my terms. As long as everything is planned and I know what to expect from it (living with anxiety and panic disorder really does kick my butt!) then hopefully I should be okay. I can’t cope with not knowing what is happening and I have to be aware of whatever it is that’s going on hence why I will ask like a hundred questions! Ha ha much to others’ annoyance!!
The last few weeks I have been struggling with self esteem and my sleeping pattern has been terrible. It’s been a bit of a battle trying to keep my body going at times but as always, you’ll see me with a smile and my makeup looking pretty. I know those who are very close to me who I talk to daily, have been stars. When I’m sure I’ve been difficult, anxiety ridden and emotional making them feel like giving up on me, I wouldn’t blame them tbh but they have stuck by my side. I would be lost without them. I may have driven them crazy but they have kept me sane. I trust them so much and I love spending time talking to them and playing PUBG with them. They’re both my best friends and I love them both. One of those people I can’t wait to see them again after such a long time and the other, I’d love nothing more than to meet them one day. I place my gratitude towards my other friends too, especially for checking in on me every now and then.
I cannot express how thankful I am for my family for always being there, looking after me and doing what you do for me. Many thanks go to my little niece who I love and adore so dearly. She makes me want to be the best auntie I can be for her and make her proud of me.
I do hope that 2019 is going to be the best year yet, and not too much health issues arising. If they do, I will face them the way I know how and get through it. One thing that I do have to look forward to is seeing the Backstreet Boys again, ten days after my birthday!! I’m awaiting for the vip packages upgrades tonne released then I know I will be meeting them again. As much as I am trying not to let it creep into my thoughts, I do find myself getting anxious about the travelling and whether I’ll be okay as it’ll be a hectic few days away from home. Everyone who knows me knows what happened on my last visit to Manchester so as expected, I do feel anxious. Right now my excitement is what I’m mostly concentrating on and so I should be.
Anyway, I’m hoping it won’t be as long before I upload another new post again as I have missed blogging and sharing my thoughts/life with you. Thank you for reading and I’ll talk to you soon ’

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Hi everyone! As many of you who follow us over on our Facebook page Dinkykts EDS Diaries, you will be aware that we are coming up to 10 years since we began, back in February 2013. So slowly, we are looking back on the positives of our campaign work. I believe in celebrating these milestones and why not?!! While the odd bit of Dinkykts EDS Diaries has received bits of help from various individuals, the majority has been done by myself (Katie) so anything that has been done is incredible. I know that we haven't done huge things, what we have done is wonderful and I am proud. Looking back, we never did manage to organise a family fun-day and that was one of the reasons why we began this campaign but due to the nature of having a rare disease like Ehlers-Danlos Syndrome, you just never know what life throws at you. Perhaps in the near future, we can actually organise a family fun-day? Hopefully this time, I won't end up in hospital (twice) haha! I have always wanted to go out in the community, whether it's going into schools, colleges, medical panels or having a stall where I meet random members of the public and raise awareness, and hopefully fundraise at the same time. I did get a taster of going into classes at college when I attended my local sixth form college and I really enjoyed it. We will be showcasing whatever we do on our YouTube channel as that's our main focus of awareness work. We also have the whole month of May to do lots of things as that's EDS Awareness Month and we want your ideas/suggestions! So definitely more highlights to come in 2023 and beyond!! Love DinkyKt
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