DinkyKt's Blog

Been A Month Already?!

Katie Wearing • January 8, 2022

Been A Month Since I Featured on Barrow AFC's Website!!

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Hi everyone!

Happy New Year!! I hope you all have had a lovely Christmas and excited for the new year.

As it's now the 8th of January 2022, it has been just over a month since I featured on the website and social media of my local football club' Barrow AFC. I still can't believe that they gave me the opportunity and the platform to share my story, especially as it was for The International Day of Disabled Persons' Day. So much gratitude goes towards the club! So far the article has had 451 views! Check out barrowafc.com to see the full article. I feel proud of myself for writing it.
I hope to get more wonderful opportunities thrown my way this year as it helps raises awareness about Ehlers-Danlos Syndrome out there in the wide world and not just online. Obviously, the individual opportunities will depend on how circumstances are with Covid and the locations. I would be just as happy if somewhere wanted to sell my merchandise and are happy in working with me in sharing my story, in my own words.
When I was a student at my local sixth form college, I was invited into various different classes to talk to the students and even though I remember feeling nervous before each time, I always enjoyed it and felt confident in myself. The staff found me to be easy to engage with the students which helped a lot.
So if you are interested in working with me in raising awareness about Ehlers-Danlos Syndrome and disability related issues, then please do contact me via email. Hopefully my Barrow AFC article can be the start of something new and exciting, doing something really important which can help others who are in/have been/or will be where I am with my health journey!!

Thank you for reading this, thank you again to the club and to everyone who has helped get me to where I am today with this awareness campaign.

Love Katie

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Hi everyone! As many of you who follow us over on our Facebook page Dinkykts EDS Diaries, you will be aware that we are coming up to 10 years since we began, back in February 2013. So slowly, we are looking back on the positives of our campaign work. I believe in celebrating these milestones and why not?!! While the odd bit of Dinkykts EDS Diaries has received bits of help from various individuals, the majority has been done by myself (Katie) so anything that has been done is incredible. I know that we haven't done huge things, what we have done is wonderful and I am proud. Looking back, we never did manage to organise a family fun-day and that was one of the reasons why we began this campaign but due to the nature of having a rare disease like Ehlers-Danlos Syndrome, you just never know what life throws at you. Perhaps in the near future, we can actually organise a family fun-day? Hopefully this time, I won't end up in hospital (twice) haha! I have always wanted to go out in the community, whether it's going into schools, colleges, medical panels or having a stall where I meet random members of the public and raise awareness, and hopefully fundraise at the same time. I did get a taster of going into classes at college when I attended my local sixth form college and I really enjoyed it. We will be showcasing whatever we do on our YouTube channel as that's our main focus of awareness work. We also have the whole month of May to do lots of things as that's EDS Awareness Month and we want your ideas/suggestions! So definitely more highlights to come in 2023 and beyond!! Love DinkyKt
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